Updated May, 2019
If you have come this far and are considering donating, thank you! Your donations are incredibly appreciated and directly impact how much physical therapy, equipment (not covered by public/private insurance) and travel costs associated with his sessions in the US that we are able to provide for Noah.
We have set up an easy-to-use donation system that accepts multiple payment forms, one-time or recurring donations, as well as giving you the option to cover the service costs (about 3%) through Donorbox.org. All "Donate" links in our website take you to our Donorbox page. If you would like to learn more, read on. Otherwise, you can go straight to the donate page
All physical and occupational therapy costs for Noah are out of pocket expenses. Because spinal cord injury in the pediatric population is so rare in Canada, we do not have access in Canada to the care Noah needs. We have to travel to the United States for suitable therapy, and that costs a lot of money.
We have been on single income for almost 4 years now, as Noah still requires full time care at home. Therefore mom stays home with Noah, providing as much rehab exercises as she can alone (it is not enough) and dad works to support the family.
This fall, Noah starts Junior Kindergarten, which as exciting as it is comes with its share of challenges -- we require a Personal Support Worker (PSW) to assist with his care during before and after school care, and the 3 levels of government only cover a small portion of the costs. We hope mom will be able to return to work also, to help with these expenses.
Noah has started to take steps in January of 2018 and with further intense rehabilitation he could someday walk. Progress is slow, and requires a lot of physiotherapy to progress. Not only that, intense, specialized rehab has been proven to improve other conditions, such as bowel and bladder control, respiratory issues and spinal cord deviations (scoliosis) which requires invasive, risky surgery to repair.
The cost of rehabilitation for 3 hours/day for 3 weeks is approximately $5,000, plus travel and lodging. Our goal is to provide Noah with intense rehab 2-3 times a year. We will also continue therapy in Canada, to cut down the chances of Noah requiring spine surgery. The therapy in Canada is $130 for 50 minutes. Insurance only covers $500 a year for therapy, and there is no financial assistance from the Canadian government. The costs quickly add up to tens of thousands of dollars a year.
Rehabilitation is not only to increase his chances of walking. Being stagnant and immobile at such a young age has many consequences that can be mitigated with physical therapy. Other therapy benefits include:
- Maintain/increase bone density and decrease chance of fractures, osteoporosis or surgery (Noah had 2 femur fractures)
- Increase and maintain range of motion/flexibility
- Improve cardiovascular and respiratory function
- Improve bowel and bladder function through upright weight-bearing activities
- Improve muscle strength and endurance levels in a functional manner
- Increase independence in age appropriate activities and developmental motor skills
- Tone and spasticity management
- Prevention of pressure ulcers and maintaining skin integrity
- Improve static and dynamic standing balance